Links
Skin Care Campaign
The SCC is an umbrella organisation representing the interests of all people with skin disease in the UK. Established in 1992, it is a subsidiary of the National Eczema Society, a registered charity.
Web: www.skincarecampaign.org
Allergy UK
Simmons (Information Manager), Allergy UK, 3 White Oak Square, London Road, Swanley
Kent BR8 7AG
Tel: 01322 – 619 898 Helpline: 01322 – 619 864 Fax: 01322 – 663 480
Email: info@allergyuk.org
Web: www.allergyuk.org
Alopecia Awareness
Alopecia Awareness, 162 Manor View, Par, Cornwall, PL24 2EN
Tel: 07834958578 (Wendy Woodrow) or 01726814371 (Leanne Flavell)
Email: wendy@alopecia-awareness.org.uk or leanne@alopecia-awareness.org.uk
Web: www.alopecia-awareness.org.uk
Alopeica UK
Alopecia UK, 5 Titchwell Road, London, SW18 3LW
Tel: 02083331661
Email: info@alopeciaonline.org.uk
Web: www.alopeciaonline.org.uk
Behcet’s Syndrome Society
43 Park Gate Crescent, Hadley Wood, Barnet, Herts, EN4 0NW
Office: 0845 130 7328
Helpline: 0845 130 7329
Email: info@behcets-society.fsnet.co.uk
Web: www.behcets.org.uk
British Association of Cancer United Patients (Cancerbackup)
Joanne Rule, Cancerbackup, 3 Bath Place, Rivington Street, London EC2A 3JR
Tel: 020 7696 9003 Fax: 020 7696 9002
Email: info@cancerbacup.org
Web: www.cancerbacup.org.uk
British Association of Skin Camouflage
The British Association of Skin Camouflage, C/O Resources for Business, South Park Road, Macclesfield, SK11 6SH
Tel: 01625267880 or 01625871129
Email: thorpm@resources.demon.co.uk
Web: www.skin-camouflage.net
British Red Cross
Cathy Kingsbury, UK Service Development, Community Services Unit, 44 Moorfields, London EC2Y 9AL
Tel: 02078777284
Web: www.redcross.org.uk
Caring Matters Now (CMN) The Congenital Melanocytic Naevus Support Group
Jodi Unsworth, Caring Matters Now, Bridge Chapel Centre, Heath Road, Liverpool L19 4XR
Tel: 0151 – 281 9716 24 Hour Line: 07970 498 787
Web: www.caringmattersnow.co.uk
Changing Faces
Mr James Partridge, Executive Director, Changing Faces, Changing Faces Centre, 33-37 University Street, London WC1E
6JN
Tel: 0845 4500 275
Email: info@changingfaces.co.uk
Web: www.changingfaces.org.uk
Darier’s Disease Support Group
Mrs J Davies, 29 St Ann’s Road, Hakin, Milford Haven, Pembrokeshire SA73 3LQ
Tel: 01646695 055
Web: www.dariers.com
DEBRA
Mr John Dart, DEBRA, Debra House, 13 Wellington Business Park, Dukes Ride, Crowthorne, Berkshire RG45 6LS
Tel: 01344771 961
Email: debra@debra.org.uk
Web: www.debra.org.uk
Ectodermal Dysplasia Society
Mrs Diana Perry, Ectodermal Dysplasia Society, 108 Charlton Lane, Cheltenham, Gloucester GL53 9EA
Tel: 01242261332
Email: diana@ectodermaldysplasia.org
Web: www.ectodermaldysplasia.org
Ehlers-Danlos Support Group
Mrs Libby Godden (Administrator), Ehlers-Danlos Support Group, PO Box 337, Aldershot, Hampshire GU12 6WZ
Tel: 01252690940
Email: info@ehlers-danlos.org
Web: www.ehlers-danlos.org
Gorlin Syndrome Group
Margater CosTello, Gorlin Syndrome Group, 11 Blackberry Way, Penswortham, Preston, PR1 9LQ
Tel: 01772517624
Email: info@gorlingroup.co.uk
Web: www.gorlingroup.co.uk
Hairline International
Ms Elizabeth Steel MBE, Hairline International – The Alopecia Patients’ Society, Lyons Court, 1668 High Street, Knowle, West Midlands B93 0LY
Tel: 01564775 281
Web: www.hairlineinternational.co.uk
The Herpes Viruses Association/Shingles Support Group
Miss Marian Nicholson and Nigel Scott, 41 North Road, London N7 9DP
Tel: 02076079661 (professional calls) Helpline: 08451232305 (public)
Web: www.herpes.org.uk
Hyperhidrosis Support Group
Mrs Julie Halford
Email: info@hyperhidrosisuk.org
Web: www.hyperhidrosisuk.org
Ichthyosis Support Group
PO Box 1404, Bagshott, GU22 2LS
Tel: 08456029202
Email: ISG@ichthyosis.co.uk
Web: www.ichthyosis.org.uk
Latex Allergy Support Group
Ms aleks Kinay, PO Box 27, Filey, Yorkshire YO14 9YH
Helpline: 07071 225 838 (7pm - 10pm Monday to Friday)
Web: www.lasg.co.uk
LEPRA - the British Leprosy Relief Association
Mr T Vasey, LEPRA, Fairfax House, Causton road, Colchester, CO1 1PU
Tel: 01206562286
Web: www.lepra.org.uk
Let’s Face It
Mrs C Piff, Let’s Face It, 72 Victoria Avenue, Westgate on Sea, Kent CT8 8BH
Tel: 01843 833 724
Email: chrisletsfaceit@aol.com or julialetsfaceit@aol.com
Web: www.lets-face-it.org.uk
London Vulval Pain Support Group
Tel: 07837533992
Email: londonvps@yahoo.co.uk
Web: www.vul-pain.dircon.co.uk/london
Lupus UK
Mr Chris Maker, Lupus UK, St James’ House, Eastern Road, Romford, Essex RM1 3NH
Tel: 01708 – 731 251 Fax: 01708 – 731 252
Web: www.lupusuk.com
Lymphoma Association (LA)
Mrs Ros Reading, Lymphoma Association, PO Box 386, Aylesbury, Buckinghamshire HP20 2GA
Helpline: 0808 808 5555 Office: 01296 – 619 400
Web: www.lymphoma.org.uk
Marfan Association UK
Mrs Diane L Rust (Chairman), Marfan Association UK, Rochester House, 5 Aldershot Road
Fleet, Hampshire GU51 3NG
Tel: 01252 – 810 472 Fax: 01252 – 810 473
Email: marfan@tinyonline.co.uk
Web: www.marfan-association.org.uk
Myositis Support Group
Irene Oakley, Myositis Support Group, 146 Newtown Road, Woolston, Southampton, Hampshire SO19 9HR
Tel: 023 8044 9708
Email: info@myositis.org.uk
Web: www.myositis.org.uk
National Eczema Society
S Ward, Hill House, Highgate Hill, London N19 5NA
Tel: 020 7281 3553 Helpline: 0870 241 3604
Email: helpline@eczema.org or eczemapro@eczema.org
Web: www.eczema.org
National Lichen Sclerosus Support Group
Ms Fabia Brackenbury, PO Box 7600, Hungerford, Berkshire RG17 7XD
Tel: 07765947599
Web: www.lichensclerosus.org
The Neurofibromatosis Association
Mrs Roberta Tweedy (Chief Executive), The Neurofibromatosis Association, Quayside House, 38 High Street, Kingston on Thames, Surrey KT1 1HL
Tel: 020 8439 1234
Email: info@nfa.uk.org
Web: www.nfa.uk.org
Nutritionist Resource
Coliseum, Riverside Way, Camberley, Surrey, GU15 3YL
Tel: 0844 8030 244
Web: http://www.nutritionist-resource.org.uk/
Pemphigus Vulgaris Network
Miss Siri Lowe, Pemphigus Vulgaris Network, Flat C, 26 St Germans Road, London SE23 1RJ
Tel: 020 8690 6462
Web: www.pemphigus.org.uk
Primary Immunodeficiency Association (PIA)
David Watters, Primary Immunodeficiency Association, Alliance House, 12 Caxton Street London SW1H 0QS
Tel: 020 7976 7640
Email: info@pia.org.uk
Web: www.pia.org.uk
The Pseudoxanthoma Elasticum (PXE) Support Group
Miss Elspeth MW Lax, 15 Mead Close, Marlow, Bucks SL7 1HR
Tel: 01628 – 476 687
Email: PXEeurope@aol.com
Web: www.pxe.org.uk
The Psoriasis Association
Gladys Edwards (Chief Executive) or J Chapman, The Psoriasis Assocation, 7 Milton Street, Northampton NN2 7JG
Tel: 01604 – 711 129
Email: mail@psoriasis.demon.co.uk
Web: www.psoriasis-association.org.uk
Psoriatic Arthropathy Alliance
David Chandler/Julie Chandler, PAPAA - The Psoriasis and Psoriatic Arthropathy Alliance, PO Box 111, St Albans Herts AL2 3JQ
Tel: 0870 770 3212
Fax: 0870 770 03213
Email: info@papaa.org
Web: www.papaa.org
Raynaud’s & Scleroderma Association Trust
Mrs Anne Maudsley MBE, Raynaud’s & Scleroderma Association Trust, 112 Crewe Road, Alsager, Cheshire ST7 2JA
Tel: 01270 – 872 776
Email: info@raynauds.org.uk
Web: www.raynauds.org.uk
The Scleroderma Society
Kim Fligelstone (Chairman), The Scleroderma Society, 3 Caple Road, Harlesden London NW10 8AB
Tel: 020 8961 4912
Email: kim@sclerodermasociety.co.uk
Web: www.sclerodermasociety.co.uk
Shingles Support Society/Herpes Virus Association
Miss Marian Nicholson and Nigel Scott, 41 North Road, London N7 9DP
Tel: 020 7607 9661 (professional calls) Helpline: 0845 123 2305 (public)
Web: www.herpes.org.uk
Telangiectasia Self Help Group
Mrs DM Lawson (Co-ordinator/Organiser), Telangiectasia Self Help Group, 39 Sunny Croft, Downley, High Wycombe, Bucks HP13 5UQ
Tel: 01494 – 528 047
Email: info@Telangiectasia.co.uk
Web: www.Telangiectasia.co.uk
Terrence Higgins Trust
2-54 Gray’s Inn Road, London WC1X 8JU
Tel: 020 7831 0330 Helpline: 0845 1221 200
Web: www.tht.org.uk
Tuberous Sclerosis Association
Ms Janet Medcalf, Tuberous Sclerosis Association, PO Box 9644, Bromsgrove Worcester B61 0FP
Tel: 01527 – 871 898
Web: www.tuberous-sclerosis.org
The Vitiligo Society
Helen Broughton (Service Manager), The Vitiligo Society, 125 Kennington Road London SE11 6SF
Freephone: 0800 018 2631
Tel: 020 7840 0855
Email: all@vitiligosociety.org.uk
Web: www.vitiligosociety.org.uk
Wessex Cancer Trust Marc's Line
Jane Freak (Clinical Nurse Specialist in Skin Cancer Prevention), Marc’s Line Resource Centre Dermatology Day Treatment Centre, Level 2, Salisbury District Hospital, Salisbury, Wiltshire SP2 8BJ
Tel: 01722 – 415 071
Email: jane.freak@salisbury.nhs.uk
Web: www.k-Web.co.uk/charity/wct/wct.html
